Doose Syndrome

Myoclonic-Astatic Epilepsy (MAE) or Doose Syndrome is a rare form of childhood epilepsy that contains many seizure types and is difficult to control. Our journey started in January 2012 and this blog is to let family and friends follow us on our journey. I hope this blog also helps educate people about epilepsy and Doose Syndrome.

Michelle

Sunday, June 23, 2013

Preschool Graduation

This week Joshua graduated from preschool.  His teacher had a little ceremony in his classroom where each child received a certificate when their name was called.  We then went to the library for treats and a video of the kids throughout the year.  I was crying the whole time watching the video as I'm sad he is leaving Ms. Janet and his classroom he has grown to love.  He was so distraught when he was removed from daycare and put into developmental preschool, but he has come such a long way and really opened up this year.  Ms. Janet is an amazing teacher who I know loved Joshua to pieces and who I grew very fond over throughout the year.  We will miss her dearly next year, but plan to stay in touch. 

Next year Joshua will be attending Ridgecrest (a different school) for Developmental Kindergarten as he is not ready for General Education Kindergarten yet.  His Kindergarten will be 1/2 day and he was placed in the AM class because the nurse is there in the morning and he needs to be where they have a nurse in case they have to give him emergency meds.  A few weeks ago, we were able to go to his new school and see his new classroom and meet his new teacher.  He was really not liking that he had to change schools and teachers, but I'm sure he will warm up to it in the fall.  His teacher seemed really nice and very interested in learning about his condition and the diet.  She said she would take me up on my offer for me to come talk to the teachers and give a presentation on epilepsy, Doose Syndrome and the Ketogenic Diet.  The classroom size is really small and there is 1 teacher and 2 para educators so he will get a lot of 1:1 instruction and help which will be great.  We already had his IEP meeting so everything is set and ready to go for next year.  We filled out is mountain of paperwork for the new school and all the medical forms - ugh - it is a lot.  Bring on Kindergarten in the fall!  We are looking forward to it.

Below are some pictures from the big preschool graduation celebration! 

The board listing the graduates!

Joshua's board of pictures and writing

Ms. Janet - his amazing teacher giving him his certificate

Eating his Keto cupcake

With Ms. Janet again

Daddy and Joshua

Mommy & Joshua

Outside in front of the school


 
We won't go to this school next year so had to get a pic

1 comment:

  1. Way to go, Joshua! You are going to be amazing in kindergarten!

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