On March 5th we returned to have a 2nd EEG and to meet with Dr. Korol to review the results. Joshua fought this EEG as well and was not cooperative when we were getting him hooked up. However, once he was hooked up he immediately fell asleep as we had sleep deprived him again the night before. He had LOTS of Myoclonic seizures during the EEG which was not surprising because by now we had noticed that he had these types of seizures every time he fell asleep during nap or at night. In addition to the EEG they video taped him so the neurlogist could see his physical signs of the seizures as well as his EEG abnormal brain activity side by side. Several of these Myoclonic seizures were so large they made his head lift up or made him cry.
After the EEG we met with Dr. Korol and based on the EEG results she confirmed the diagnosis of Doose Syndrome. Additionally, she started him on a new medication that day called Zonegran. She added Zonegran to help with the Myoclonic seizures that he was having so frequently when he slept (some nights he would have seizures ALL night long, constantly). This new med was a liquid and Joshua likes the taste of it so he doesn't put up a fight. Again, we received a long list of side effects when we received the medication, some very serious. More reading for me......
After confirmed diagnosis I started more research and reading about Doose Syndrome and the treatments for it, along with problems that children with this syndrome often experience. It was a LOT Of reading!
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