Two days after the EEG we returned to get the results of the EEG. It was Wednesday, February 1st. The neurologist that met with us to give us the results was extremely nice and did her best to explain everything to us, but we had so many questions and we talked about so much that I don't clearly recall a lot of the conversation. However, some key things stuck firmly in my mind. The first was what I thought were seizures during the EEG were in fact seizures and that the neurologist agreed that he was having Atonic (drop) seizures. The 2nd was that he was being diagnosed with a seizure disorder (aka epilepsy). The 3rd was that when asked how many seizures he had during the EEG she responded with "I don't know - I stopped counting because it was so many". The 4th was that she described his EEG as "dramatically abnormal". The 5th was that he needed to be put on anti-epileptic drugs ASAP to try to get his seizures under control. She prescribed him Depakote sprinkles (capsules that you open and sprinkle the medicine onto food like pudding or applesauce for kids) at 125mg per capsule twice per day (once in the morning and once at night). She went over the most common side effects of Depakote and handed me a pamphlet that contained ALL the side effects which was quite extensive. She explained he would need blood draws over time to ensure the medication was not affecting him negatively.
We filled the prescription that afternoon and gave him his first dose of Depakote that evening. He took his dose without any problems in the pudding.
I alerted daycare that day of what his diagnosis was and I had to fill out a seizure action plan in order for him to continue to attend the next day. I spent the afternoon filling out paperwork, getting doctor signatures, faxing documents and crying. Lots and lots of crying - I knew our lives had just changed drastically.
No comments:
Post a Comment