Doose Syndrome

Myoclonic-Astatic Epilepsy (MAE) or Doose Syndrome is a rare form of childhood epilepsy that contains many seizure types and is difficult to control. Our journey started in January 2012 and this blog is to let family and friends follow us on our journey. I hope this blog also helps educate people about epilepsy and Doose Syndrome.

Michelle

Tuesday, April 10, 2012

Seizure Tracking

Prior to meeting with the neurologist we started tracking Joshua's seizures and video taping him at various times during the day.  Joshua was averaging about 5-7 head drops (Atonic seizures) per day during this time and we caught several on video.  He would often hit his head if he was eating or in front of something.  A few times they happened while he was walking and they would cause him to trip and/or fall.  These drop seizures were becoming a part of our daily lives and fast!  We also noticed when video taping him that sometimes he would "stare" off and be "out of it" for a few seconds.  We later found out these were called absence seizures (the 2nd seizure type we noticed). 

Attached is a video of several drop seizures that we video taped early on (prior to getting the results of the EEG and meeting with the neurologist); some are more severe than others.  Please note that some people find this video upsetting to view. 

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